Joy and sorrow...one day at a time...

It's been a rough few weeks for our little MTM-CNM community. It seems that there is a rise is heart or seizure related activity. More and more I am realizing that, although incredibly horrible, we dodged a bullet last year. Javad survived and, although we are unsure of all the potential damage, he seems fairly unscathed. I mean, let's be realistic...we have lost a lot. Javad essentially cannot move and has lost almost all function, but he survived. I try to focus on the good, but it is hard not to feel the loss. Then, in weeks like this, I am reminded how luck we are. Two children lost their lives in the last week. Both had major events that started their decline. Both events were startlingly similar to last year with Javad. There are two more boys in the hospital...both so sick.
We are happy to be in Rehab...even if it sounds funny, I am grateful to be here. Two days in the books and Javad is working really hard. I am grateful and hopeful. I know my own personal sorrow is at times deep, but I also know that I need to have joy to celebrate that we have made it through this year. We continue to be warriors. I continue to take life one day at a time...it is all I can do and , frankly, I am grateful that we have days to take...one at a time! #giraffestrong #mtmfamily #giraffesforjavad
Thank you for sharing this. I am with you in spirit always. Sending light love and healing energy for your path.
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