Nursing our mental and physical health...

MTM-CNM Thankfulness Initiative Day 3: When you have a child that is medically fragile, you have to make concessions...time, freedom, friendships, family, sleep, and sometimes even your sanity..

Many of these concessions come don't see them coming until they have blasted through you, leaving you breathless and sometimes flustered, not knowing what just hit you.

In our case, Javad was a surprise...on so may levels...but his birth, and lack of health, was a big shock. Everyone assumes that your child will be healthy...we assumed the same...until it wasn't.  I vividly remember one of the NICU nurses, Ron, telling the Neonatologist that we could benefit from home nursing and her response essentially being that it wasn't going to happen. At that time I had no idea what that meant, but now I realize that they were sending our sweetest boy home to die...nursing wouldn't be needed. He had other plans....

After five months the insurance decided that it was more economic to have nursing...our boy was a fighter...after thirteen years, he still is!

One of the main reasons we have made it these thirteen years is because we have been lucky to have wonderful nursing care. Our primary nurse, Anne, has been with us since Javad was five months old. Think about that for a moment...she has been here for it all...the good, the bad, the ugly. She is a member of our family in so many ways and I can't imagine our life without her. There are other nurses that have been with us for a long time...Alice has been taking care of Javad for 10 years, and then we have some newer nurses, Codie, Alicia, Lauren, and Shelley. Each one becomes a part of our journey to keep the boy healthy and growing.

I realize that we have been lucky...we have won the lottery, for the most part, and have had wonderful, committed, and caring individuals who have made it their priority to help us defy the odds...

For that...I am thankful! <3

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