The Nest...
Tonight while putting my son to bed, I asked him this question, "Do you want to go in the nest?" With a giant grin on his face, he nodded fervently. "The Nest" is a pregnancy pillow that has been used for some time as a supportive sleeping arrangement for a little boy who can't move or support himself. The feeling of being surrounded by a pillow, his knees at a slight bend and the sides hugging him..It must be amazing and comforting. Within 10 minutes he was asleep.
If you don't know about my cutest boy, he has a very rare muscular disease called Myotubular Myopathy. He has had it since birth and it causes severe weakness in all the major muscle groups. He is in a wheelchair full time, but goes to school, has friends, is one of the greatest boys ever.
When I think about his life and the few real choices he has, I think about the things that bring him real joy...the things that he loves...
I think about my own life and the struggles that have been present in the last few years and recognize that my life is filled with choices...I've made good ones and poor ones, but I've had the power to choose. I am choosing to surround myself with my own form of "nest"...things that bring me comfort, people who make me feel safe.
My heart smiles when I think of the cutest boy...when I think of his patience, his love, his smile...
We all need to build our nests...build a place of comfort to surround us when we need it. Find the place in our heart where peace lives...
If you don't know about my cutest boy, he has a very rare muscular disease called Myotubular Myopathy. He has had it since birth and it causes severe weakness in all the major muscle groups. He is in a wheelchair full time, but goes to school, has friends, is one of the greatest boys ever.
When I think about his life and the few real choices he has, I think about the things that bring him real joy...the things that he loves...I think about my own life and the struggles that have been present in the last few years and recognize that my life is filled with choices...I've made good ones and poor ones, but I've had the power to choose. I am choosing to surround myself with my own form of "nest"...things that bring me comfort, people who make me feel safe.
My heart smiles when I think of the cutest boy...when I think of his patience, his love, his smile...
We all need to build our nests...build a place of comfort to surround us when we need it. Find the place in our heart where peace lives...
What a wonderful idea! I think many more children might love to have a nest. I remember when I was growing up I could never get enough hugs. I just felt the need to be held often. I think I would have loved the nest!
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