A journey of the heart...

My dear friends. who lost their son this fall, are on a journey this winter break...a journey of the heart. They have chosen to take supplies and equipment to other families in need, other families who have children affected by MTM. Although I have not spoken to them...I feel that I am on this journey with them...my heart that was shattered alongside theirs leaving pieces in each and every stop. These gifts are a small reflection of their son that will shine throughout the United States. Each time another child uses the equipment, his memory is refreshed.

Their journey has taken them over 7000 miles. Seven thousand miles of gorgeous sunrises, colorful sunsets, mountains and deserts. Sights where their son's spirit shines through. This journey, their journey of the heart, has been a way to honor him, honor their union as a family, and mourn his loss.

Sometimes you meet people in your life...people who are good, kind, special. They are these kind of people...real, genuine. They not only openly shared the life of their son, but even in his death have shared deep intimate feelings. They have allowed others, like myself, to walk the journey with them. They have allowed other hearts to be bound with theirs.

It has been a gift...their unselfishness, their openness.

This journey, one that is ongoing, has allowed others to be with them...I am honored to be allowed to walk alongside them...I am grateful to be their friend.

Comments

  1. Brenda StevensDecember 29, 2013 at 9:14 AM

    What is MTM?

    ReplyDelete
  2. UnknownJanuary 2, 2014 at 5:59 PM

    Myotubular Myopathy, it is a rare neuromuscular disease that is genetic. Our sons have this disease.

    ReplyDelete
  3. http://pickwriters.com/December 1, 2017 at 4:58 AM

    Very moving post. Puts me in the thinking mood right now, that life is short and we really need to cherish every moment we have with our family, friends and beloved. Thank you for posting this.

    ReplyDelete

Post a Comment

Send me some love...

Popular posts from this blog

Just Stop....

Image
Note: This might be more of my opinion than you like...I am sorry if you don't agree. I am comfortable agreeing to disagree...Just my thoughts today! Today I had another migraine...I am over it. Two awful headaches in two weeks requiring medication...Ugh! Sometimes I want to tell my body...stop, JUST STOP!!! Stop hurting, stop! I have had enough... There are so many times this year I want to say: Just Stop ! To my students : Just Stop! I know that you think that you know what it's going to be like in high school, but you don't. I really have knowledge here and I want to help  you... Trust me! To the Parents:   Just Stop! Stop blaming others and help us help your student. Know that your vote matters. We want to support your student...we love them too, but we can't without money and volunteer time. Come to events, let us help you, help them... To my district: Just Stop! I know that the OAKS test is important (our state assessment), but  we need to focus
Read more

Perspective....

Image
Throughout our lives, we have lessons to learn. Some of these lessons are painful...others fleetingly come through our lives, swiftly going by. One of the most important part about lessons is being willing to learn them... If we are unwilling to learn then we will be unable to move forward. Whether or not we are willing to learn is determined by our perspective. Our mental view determines the next step. Perspective...how we view the world and others around us. How we interpret information and process it.  The cartoon on the right really illustrates where I am right now in my personal life. I recognize that perspective is a driving force and I must work to maintain my perspective. Recognizing that others may not see things the same as I do is expected, but the variance in perspective is what I am struggling with.  I am not sure what lessons I am to be learning right now...the parts of my life that have kept me grounded have left me floating aimlessly. My heart is pounding
Read more

Expectation vs Reality...

Image
Life is never what it seems...reading the titles of seminars in brochures can be a mixed bag. Sometimes the seminar that you get is far beyond what you could have imagined, while other times what you get is so much less than you ever thought possible. How is it that there is this complex dilemma regarding expectations? How is it that the reality of life can either far exceed (or be far more underwhelming) than one thought possible? You never know whether to expect triumph or tragedy...an ebb or flow. It's like coming to the table expecting the grandest feast and instead being served gruel and moldy bread. Where is the equity? Expectations versus reality can be a difficult space to have in your brain. Wanting to be realistic about the expectations that are possible while not being defeated about what reality is serving up. Seeing ahead and knowing what the end game is, but being confronted with a winding maze with dead ends and obstacles not mentioned beforehand. The strong put on
Read more