A sisters journey

My friends...today my blog is about someone else. My daughter. She has begun writing about her journey as the cutest boys sister...consider stopping by her blog-www.anmtmsistersjourneytounderstand.blogspot.com

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Just Stop....

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Note: This might be more of my opinion than you like...I am sorry if you don't agree. I am comfortable agreeing to disagree...Just my thoughts today! Today I had another migraine...I am over it. Two awful headaches in two weeks requiring medication...Ugh! Sometimes I want to tell my body...stop, JUST STOP!!! Stop hurting, stop! I have had enough... There are so many times this year I want to say: Just Stop ! To my students : Just Stop! I know that you think that you know what it's going to be like in high school, but you don't. I really have knowledge here and I want to help  you... Trust me! To the Parents:   Just Stop! Stop blaming others and help us help your student. Know that your vote matters. We want to support your student...we love them too, but we can't without money and volunteer time. Come to events, let us help you, help them... To my district: Just Stop! I know that the OAKS test is important (our state assessment), but  we need to focus
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Perspective....

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Throughout our lives, we have lessons to learn. Some of these lessons are painful...others fleetingly come through our lives, swiftly going by. One of the most important part about lessons is being willing to learn them... If we are unwilling to learn then we will be unable to move forward. Whether or not we are willing to learn is determined by our perspective. Our mental view determines the next step. Perspective...how we view the world and others around us. How we interpret information and process it.  The cartoon on the right really illustrates where I am right now in my personal life. I recognize that perspective is a driving force and I must work to maintain my perspective. Recognizing that others may not see things the same as I do is expected, but the variance in perspective is what I am struggling with.  I am not sure what lessons I am to be learning right now...the parts of my life that have kept me grounded have left me floating aimlessly. My heart is pounding
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The Birth of a Sun

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  Over 4.6 billion years ago, right before the COVID pandemic started, a giant cloud of gas and dust swirled about in space. This Solar Nebula collapsed under its own gravity and the materials were pulled to the center forming what we know to be our Sun. Someday, maybe 5 more billion years from now, the Sun will die and become a giant red star, engulfing nearby planets, possibly including Earth.  Today I was talking to some old friends, whose son also had Myotubular Myopathy. They were telling me the story of his final illness, which ultimately took his life. I cried, my heart is broken for these parents who gave their son every opportunity, who built a world for him that created experiences that often far exceeded what others thought he would be physically able to do. This young man fully experienced life until his last days. I think about my own son, who is my sun, one which much of my life revolves around. There will be a time when I, too, will have to deal with my own loss. It will
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